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NDT Advance Access originally published online on June 27, 2009
Nephrology Dialysis Transplantation 2009 24(9):2615-2617; doi:10.1093/ndt/gfp275
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© The Author [2009].
The online version of this article has been published under an open access model. Users are entitled to use, reproduce, disseminate, or display the open access version of this article for non-commercial purposes provided that: the original authorship is properly and fully attributed; the Journal and Oxford University Press are attributed as the original place of publication with the correct citation details given; if an article is subsequently reproduced or disseminated not in its entirety but only in part or as a derivative work this must be clearly indicated. For commercial re-use, please contact journals.permissions@oxfordjournals.org


Progress with the European Society for Paediatric Nephrology (ESPN)/ERA-EDTA Registry for children with established renal failure (ERF)

E. Jane Tizard1, Enrico Verrina2, Karlijn J. van Stralen3 and Kitty J. Jager3

1 Department of Paediatric Nephrology, Bristol Royal Hospital for Children, Bristol, UK 2 Nephrology, Dialysis and Transplantation Unit, G Gaslini Institute, Genoa, Italy 3 ESPN/ERA-EDTA Registry, Department of Medical Informatics, Academic Medical Center, University of Amsterdam, Amsterdam, The Netherlands

Correspondence and offprint requests to: E. Jane Tizard; E-mail: jane.tizard@UHBristol.nhs.uk

Keywords: dialysis; paediatric; registry; transplant

The first 150 words of the full text of this article appear below.



   Introduction
 
Established renal failure (ERF) in children and young adults is considered a rare disease. Single country data may be underpowered to show any differences or effects of treatment and therefore cooperation between countries is essential to improve the outcome of children with ERF. Until 2007 data collection on children and young adults on renal replacement therapy (RRT) in Europe was limited to that of the European Renal Association–European Dialysis and Transplant (ERA–EDTA) Registry. Within the ERA–EDTA Registry data are collected from national and regional renal registries. As these do not always include paediatric patients, data on children have only been available from a limited part of Europe. The first publication on paediatric patients by the Amsterdam-based ERA–EDTA Registry included data on 3184 patients (aged 0–19 years) from 12 registries in 11 countries, covering a total general population of 80.3 million, who started RRT between 1980 and 2000 [1]. . . . [Full Text of this Article]



   The launch of the ESPN/ERA-EDTA Registry
 


   Future plans for the ESPN/ERA-EDTA Registry
 

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V. S. Stel, A. Kramer, C. Zoccali, and K. J. Jager
The 2007 ERA-EDTA Registry Annual Report--a Precis
NDT Plus, September 11, 2009; (2009) sfp126v1.
[Full Text] [PDF]