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EUNEFRON (the European Network for the Study of Orphan Nephropathies) is a consortium that has been mobilized in response to the Call HEALTH-2007-2.4.4-1 (`Natural course and pathophysiology of rare diseases principally affecting the genitourinary tract') of the European Union's Framework 7 programme for health. This research programme involves 12 research groups from 10 academic institutions in 8 European countries. The aim of EUNEFRON is to mobilize a critical mass of expertise