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Nephrology Dialysis Transplantation 2007 22(Supplement 7):vii194-vii244; doi:10.1093/ndt/gfm408
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© The Author [2007]. Published by Oxford University Press on behalf of ERA-EDTA. All rights reserved. For Permissions, please email: journals.permissions@oxfordjournals.org

Appendix

The first 150 words of the full text of this article appear below.



   Appendix A—The Renal Registry Statement of Purpose
 

  1. Executive summary
  2. Introduction
  3. Statement of intent
  4. Relationships of the Renal Registry
  5. The role of the Renal Registry for patients
  6. The role of the Renal Registry for nephrologists
  7. The role of the Renal Registry for Trust managers
  8. The role of the Renal Registry for commissioning agencies
  9. The role of the Renal Registry national quality assurance schemes
  10. References and websites



   A1 Executive summary
 

(1.1) The Renal Registry was established by the Renal Association to act as a resource in the development of patient care in renal disease.
(1.2) The Registry acts as a source of comparative data for audit/benchmarking, planning, policy and research. The collection and analysis of sequential biochemical and haematological data is a unique feature of the Registry.
(1.3) Agreements have been made with participating renal centres, which ensure a formal relationship with the Registry and safeguard confidentiality.
(1.4) The essence of the agreement is the acceptance of the Renal Registry Data Set . . . [Full Text of this Article]



   A2 Introduction
 


   A3 Statement of intent
 


   A4 Relationships of the Renal Registry
 


   A5 The role of the Renal Registry for patients
 


   A6 The role of the Renal Registry for nephrologists
 


   A7 The role of the Renal Registry for Trust managers
 


   A8 The role of the Renal Registry for commissioners of health care
 


   A9 The role of the Renal Registry for national quality assurance agencies
 


   A10 References
 


   Appendix B—Definitions, statistical methodology and analysis criteria, B1 Definitions of analysis quarters
 


   B2 Renal Registry modality definitions
 
Home haemodialysis
Satellite dialysis unit
Treatment modality at 90 days
Start of established renal failure
Change of modality from PD to HD


   B3 Analysis criteria
 
Definition of the take-on population (Incidence)
Definition of the prevalent population
Confidence interval
Death rate calculation
Odds ratio
Hazard function
Hazard ratio
Relative hazard
Z-scores
Definition
Calculation of the expected Z-value
Survival analyses of prevalent cohort
Criteria for analysis by treatment modality in a quarter
Criteria for analysis of biochemistry in a quarter
Treatment modality on day 90 of starting RRT
One-year survival of the take-on population
Analysis of 1-year survival of prevalent patients


   Appendix C—Renal services described for non-physicians
 


   Renal diseases
 


   Acute renal failure
 


   Chronic renal failure (CRF) and established renal failure (ERF)
 


   Causes of renal failure
 


   Prevention
 


   Complications and comorbidity
 


   Renal replacement therapy
 


   Therapeutic dialysis (‘renal dialysis’)
 


   Haemodialysis
 


   Peritoneal dialysis
 


   Renal transplantation
 


   Nature of renal services
 


   Further reading
 


   Appendix D—Methodology of standardized acceptance rates calculation and administrative area geography in the UK and the analysis of data by PCT group for England
 


   Patients
 


   Geography—Unitary Authorities, counties and other areas
 


   Administrative area geography in England and Wales
 
Unitary Authorities
Shire counties
Metropolitan counties
Greater London
Welsh Unitary Authorities
Scottish Council areas
Northern Ireland District Council areas


   Areas included in Registry ‘covered’ population
 


   Population
 


   Calculation of acceptance rates
 
Crude rate
Standardized acceptance rate ratio (SARR)


   Analysis of prevalent patients by PCT
 


   Appendix E—Data Tables
 
E1 Patients starting renal replacement in 2005
E2 Current patients 2005
E3 EDTA primary diagnosis groups
Appendix F—Acronyms and abbreviations used in the Report


   Appendix G—Vascular Access and Workforce Survey Forms
 
G1 Renal Association Vascular Access Survey 2005
Section 1A. Morbidity data
Part 2. Incident data
Part 3. Follow-up data 6 months (patients commencing RRT in April 2005)
Part 4. Organisational outline (NKRF data set). (Please return with part 2)
G2 Workforce survey


   Appendix H—laboratory conversion factors
 


   Appendix I—Abbreviations used for the renal unit names in the figures and data tables
 

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