Nephrol Dial Transplant (2000) 15: 457-459
© 2000 European Renal Association-European Dialysis and Transplant Association
Editorial Comments
The patient's appraisal of side-effects: the blind spot in quality-of-life assessments in transplant recipients
Centre for Health Services and Nursing Research, School of Public Health, Catholic University of Leuven, Leuven, Belgium
Correspondence and offprint requests to: Sabina De Geest PhD, RN,NFESC, Centre for Health Services and Nursing Research, School of Public Health, Catholic University of Leuven, Kapucijnenvoer 35, B-3000 Leuven, Belgium.
Introduction
Quality of life has emerged as an important outcome measure in health care over the past two decades and is increasingly used to evaluate treatment options. Indeed, understanding the quality-of-life implications of a new treatment modality in addition to studying its effects in terms of incidence of complications and mortality rate provides a more sophisticated and balanced view of treatment effects. Quality-of-life data offer a more complete understanding of the benefit/burden ratio associated with medical treatments in view of patients' physical, emotional/mental and social functioning. Furthermore, it provides a significant contribution to the allocation of health care resources, in determining reimbursement policies, and in individual medical decision processes [1,2].
Although quality of life has been extensively studied in transplant patients, a systematic assessment of symptoms and of side-effects related to immunosuppressive drugs is rarely integrated into quality-of-life research. However, the
Definition of quality of life
Patients' appraisal of side-effects in quality-of-life assessments in transplant recipients
Conceptualization of transplant patients' symptom experience
Relevance of symptom experience for transplant research and clinical management
Measurement of symptom experience
Conclusion
Acknowledgments
References
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