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Nephrol Dial Transplant (1992) 7: 579-586
© 1992 European Renal Association-European Dialysis and Transplant Association


other

Rehabilitation of young adults during renal replacement therapy in Europe

2. Schooling, employment, and social situation

J. H. H. Ehrich, G. Rizzoni, M. Broyer, F. P. Brunner*,, H. Brynger, W. Fassbinder, W. Geerlings, N. H. Selwood, G. Tufveson and A. J. Wing

Medizinische Hochschule Hannover, Federal Republic of Germany Ospedale Pediatrico Bambino Gesú, Istituto di Ricerca Scientifica Roma, Italy Hôpital Necker Enfants Malades Paris, France Departement für Innere Medizin, Universität Basel Switzerland Department of Surgery 1 Sahlgrenska Sjukhuset, Göteborg, Sweden Städtische Kliniken Fulda, Federal Republic of Germany Martini Ziekenhuis, Lokatie Van Swieten, Groningen, Netherlands UK Transplant Service Bristol, United Kingdom Transplantation Unit, University Hospital Uppsala, Sweden St Thomas' Hospital London, United Kingdom *Chairman

Correspondence and offprint requests to: Correspondence and offprint requests to: Professor F. P. Brunner, EDTA Registry, St Thomas' Hospital, London SE1 7EH, UK

The educational status, employment rate and social situation were studied in 617 patients between 21 and 35 years of age who started renal replacement therapy (RRT) as children. The data were derived from a special questionnaire concerning disability and rehabilitation sent to dialysis and transplant centres reporting to the EDTA Registry. Fifty-six percent of patients completed secondary school and one in three went on to vocational training. Eleven percent of patients attended university, and 16% were reported to have gone to a special school for the handicapped. Up to one-third of patients who attended different school types failed to complete their education. There were notable geographical differences in schooling and in employment. Fifty-six percent of all patients were employed. Lack of schooling was considered to be a major reason for unemployment. Sixty-one percent of patients with disabilities and 34% without disabilities were receiving invalidity payments. The place of residence of these patients aged 21–35 was usually the parental home. Compared to the general population of similar age, only a few patients were married (13.5% of the total study group) and 8% had children. In summary, the present report shows that the major factors influencing rehabilitation on RRT are the presence of disabilities, the method of treatment, geographical factors, duration of RRT, and the underlying primary renal disease.

Keywords: Dialysis; transplantation; rehabilitation; employment; schooling


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