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Nephrol Dial Transplant (1992) 7: 573-578
© 1992 European Renal Association-European Dialysis and Transplant Association

other

Rehabilitation of young adults during renal replacement therapy in Europe

The presence of disabilities

G. Rizzoni, J. H. H. Ehrich, M. Broyer, F. P. Brunner*,, H. Brynger, W. Fassbinder, W. Geerlings, N. H. Selwood, G. Tufveson and A. J. Wing

Ospedale Pediatrico Bambino Gesú, Istituto di Ricerca Scientifica Roma, Italy Medizinische Hochschule Hannover, Federal Republic of Germany Hôpital Necker Enfants Malades Paris, France Departement für Innere Medizin, Universität Basel Switzerland Department of Surgery 1 Sahlgrenska Sjukhuset, Göteborg, Sweden Städtische Kliniken Fulda Federal Republic of Germany Martini Ziekenhuis, Lokatie Van Swieten Groningen, Netherlands UK Transplant Service Bristol, United Kingdom Transplantation Unit, University Hospital Uppsala, Sweden St Thomas' Hospital London, United Kingdom *Chairman

Correspondence and offprint requests to: Correspondence and offprint request to: Professor F. P. Brunner, EDTA Registry, St Thomas' Hospital, London SE1 7EH, UK

The aim of this study was to analyse rehabilitation during RRT in 617 young adults from different European countries who started dialysis or transplantation before the age of 15 years. The data were derived from the EDTA Registry patient data files and a special questionnaire that was sent to centres reporting to the EDTA Registry. The duration of RRT was more than 10 years in 63% of patients. Fifty-four percent were living with a functioning graft and 46% were on dialysis. The prevalence and severity of motor, hearing, sight, and mental disabilities were analysed retrospectively. They were found to vary according to primary renal disease and method oftreatment. One-third of patients had one or more disabilities at the start of RRT. Although disability status had changed in many patients by 31 December 1986, some disability remained in one-third of the patients available for study. Disabilities were recorded as mild in the majority of patients. Both improvement and worsening of motor and mental disability occurred more often than changes of hearing capacity and sight. It is concluded that prevention and treatment of disabilities need special attention in children and young adults on RRT in order to improve rehabilitation

Keywords: dialysis; transplantation; rehabilitation; disabilities


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